Directly request via FHS
Investigators seeking FHS data that is not available through dbGaP or BioLINCC or seeking biological specimens may submit a proposal through the FHS web-based research application. The FHS welcomes proposals from outside investigators. Proposals may involve the use of existing data, the collection of new data, either directly from participants or from previously collected samples, images, or other materials (e.g., medical records). The FHS Repository also has biological specimens available for genetic and non-genetic research proposals. Specimens include urine, blood, brain tissue, as well as DNA. After submission, proposals will be presented to the appropriate FHS review committee to determine feasibility and compliance with FHS policies.
FHS clinical and research data is stored in the following repositories and may be accessed by application. These repositories are managed and administered independently of the Framingham Heart Study. There are no fees charged for data accessed through dbGaP or BioLINCC. Please check the following repositories before applying for data through FHS:
- dbGaP – http://www.ncbi.nlm.nih.gov/gap
- NHLBI Repository – https://biolincc.nhlbi.nih.gov/home
Checklist for directly FHS data request:
| Contents | Description |
|---|---|
| 1. FHS Research Proposal | Process for submitting an approved FHS research proposal. |
| 2. IRB Approval | Requirements for IRB approval for FHS research. |
| 3. DMDA Agreement | Legal agreements for data/materials access. |
| 4. Data Request Form & Data Transfer Fee | "Request forms for access to specific datasets and the associated data transfer fee. |
Any missing component will delay your data request!